Publications

Publications related to HemoLatin-QoL in chronological order

Remor, E. Psychometric field testing of the Hemolatin-QoL questionnaire. Heamophilia 2016; 1-11. DOI: 10.1111/hae.13055 [LINK]

Remor E. Quality of life and symptom assessment in hematological patients. Bleeding disorders. Hemophilia.. In: A. Novik; S. Salek; T. Ionova. (Org.). Patient-Reported Outcomes in Hematology (pp. 90-98). 1st ed. Genoa: Forum Service Editore, 2012. [LINK]

Remor, E. Quality of life in hemophilia. In: E.C. Rodríguez-Merchán & L. Valentino. (Eds.) Current and future issues in hemophilia care. Oxford, UK: Wiley-Blackwell, 2011. doi: 10.1002/9781119979401.ch11 [LINK]

Remor E. An overview of HemoLatin-QoL project. Quality of Life Research 2009; (Suppl.), A54-A55. [abstract]

Remor E. Psychometric field study of the HemoLatin-QoL, evidence for 297 adult patients living with hemophilia in Latin American countries. Haemophilia 2008; 14 (Suppl. 2), 152. [abstract]

Remor E, Marques de Aquino BYS, Garrido Luque A, Graña S, Rodriguez-Otero M, Rizzo Battistella L. (2006) “HemoLatin-QoL”: Psychometric study of the Latin-American disease-specific quality of life questionnaire for adult patients living with hemophilia. XXVIIth International Congress of the World Federation of Hemophilia. 21-25 May. Vancouver, Canada. [Poster]. Abstract: Haemophilia 2006; 12 (Suppl. 2), 124.

Remor E. Desarrollo de una Medida Específica para la Evaluación de la Calidad de Vida en Pacientes Adultos Viviendo con Hemofilia en América-Latina: el Hemolatin-QoL (Development of a disease-specific measure to the assessement of quality of life in adult patients living with hemophilia). Interamerican Journal of Psychology 2005; 39(2), 211-220. [LINK]

Remor E, Young NI, von Mackensen, Lopatina EG. Disease-specific quality of life measurement tools for haemophilia patients. Haemophilia 2004; 10 (Suppl. 4), 30-34. [LINK]

Remor E, Graña S, Rizzo Battistella L, Marques de Aquino BYS, Santa Cruz SO, Martinez-Triana R, Piraquive Torres G, Garcia M, Moreno B, Rodriguez-Otero M, Garrido AL. (2004) Hemolatin-QoL: Desenvolvimento de uma medida especifica para a avaliaçao da qualidade de vida em adultos com hemofilia na America Latina. II Encontro Ibero-Americano de Qualidade de Vida. 19-21 August 2004. Porto Alegre (RS), Brasil. [Poster].

Remor E, Bosh N, Garcia M, Graña S, Marques de Aquino BYS, Martinez-Triana R, Moreno B, Piraquive-Torres G, Ramos de Carvalho R, Rizzo-Battistella L, Rodrigues-Otero M, in representation of the Hemolatin-QoL Project Group. (2003). Health-related quality of life in adults living with haemophilia. Development of the new disease specific questionnaire to Latin American countries. 17th Conference of the European Health Psychology Society. 24-27 September 2003, Kos, Greece.[Book of Abstracts, page 78. Poster].